we wanted to share with you some of the organizations that help families with 22q. this is not an exhaustive list, but it does touch on some of the foundations and clinics that exist to help.
Our 2020 beneficiary: 22q11.2 Research Center and Clinic at the MIND Institute (UC Davis)
22q Foundation Australia and New Zealand
Max Appeal! (UK)
Chromosome 22q Central (Canada)
22q Center at Nationwide Children’s Hospital (Ohio)
22q and You Center at Children’s Hospital of Philadelphia
The MassGeneral for Children 22q11.2 Deletion Syndrome Clinic
The 22q/VCFS Center at Cincinnati Children’s
Chromosome 22q11.2 Deletion Syndrome Specialty Clinic at Children’s Hospital Colorado
22q Multidisciplinary Clinic at Joe DiMaggio Children’s Hospital (south FL)
feel free to email werun22q@gmail.com to help update this list with your favorite places for support!
werun22q 