We’re Putting the Band Back Together…

Hi #werun22q fans! It’s us again – we know we’ve been silent over here for awhile, but we’re quietly working behind the scenes to try to pull off a Ragnar in 2022! We’re really excited to raise funds for the UC Davis MIND Institute’s 22q Healthy Minds clinic. While we work out what the race and fundraising might look like in our mid-Covid world, we’re hoping to fill the last couple of runner spots on our team!

In order to protect all of our kiddos, our families, our friends, and our communities, we are requiring all team members to be fully vaccinated and boosted prior to race weekend and take a rapid test prior to entering the van for the weekend (this is non-negotiable). Runners must maintain a pace under 11:00min/mile for the duration of their miles (usually between 14-20 per runner) in order to finish the race in a timely fashion. We’ll help plan logistics so that all team members are able to travel to race location and coordinate hotel arrangements, but runners will be responsible for race registration and their own travel, hotels, van fees, and food.

Now for the good part! Our spring team is hoping to run Ragnar New England, starting in Groton, CT and finishing in Quincy, MA (barring no cancellations from Ragnar). The weather should be beautiful at the end of May (May 20-21) and the scenery of a Ragnar never disappoints. We’re pretty excited to be “putting the band back together” as they say and we hope that you’ll join us on this journey!

alt text: Blues Brothers gif that reads, “we’re putting the band back together”

Why We Fundraise – The Nordmeyer’s Story

Seven years ago, our son Nate was diagnosed with 22q11.2 Deletion Syndrome at the age of 3 1/2 years.  This diagnosis hit us like a ton of bricks and like every other parent in the digital age, we frantically searched the internet.  Lucky for us, we found the 22q Family Foundation (then known as The Dempster Family Foundation).

Over the years, the 22q Family Foundations has supported us, and more importantly, Nate.  They have:

  • provided education: for us, our son’s educators and medical providers via fact sheets, seminars, webinars and references.
  • promoted awareness: which has empowered us to do the same in our own community. 
  • advocated for appropriate educational services for Nate via the free Education Station.
  • fostered a community: There’s such comfort in finding others who have shared experiences, learning from those that came before us and supporting those that are new to the diagnosis. 
  • created hope for the future through scholarships for higher education and career coaching services.

Knowing that this organization is not-for-profit and run entirely by volunteers, fundraising for the 22q Family Foundation became a priority for our family.  The #werun22q Ragnar race is one of the foundation’s biggest fundraisers and is a powerful way to spread awareness.  Every year they raise funds to keep these programs running and provide the education, awareness, advocacy, support and community that have been so valuable to us and to make sure that these services are still there for the next group of frantic overwhelmed parents that are sitting down at their computer.

The Journey Begins

Hi #werun22q fans! We are so thankful you have decided to join us as we again tackle a 200ish mile relay race for 22q! We are TWELVE weeks from race weekend and getting excited!!! Over the coming weeks and months, we are going to introduce you to all 12 runners, the cause – 22q11.2, and some of the children we are running for.

You’ll read about our team, our training, our packing, and our inspiration! We promise to be real about our struggles, both with running and with 22q, but this blog will be a place of positivity. You will read about how our children are smart, kind, brave, strong, friends, loved, and amazing – both because we believe children become who we tell them they are and also because they ARE all of those things. You will read about the friendships that have been formed because of this team; we have created our own village of people to lean on and have helped our children to do the same.

We do not take this role lightly. We are honored to be able to carry the names of all of these children and young adults. We respect their hard work day in and day out and are grateful you all trust us to carry them with us!

Here’s where you come in – check out the 22q Family Foundation.  Look around this site and check out the 2019 team. Sponsor a mile for your loved one. Then send friends and family HERE to help you raise $100 for your mile!

Have questions, comments, or concerns? Send ’em our way! We can’t do this without your support!

Ragnar for Beginners

Ragnar’s tagline is Run, Eat, Sleep?, Repeat and it certainly lives up to that! If you’ve never heard of or seen a Ragnar event, here’s how it works. Ragnar Relay road races are a point-to-point kind of race – that means we’ll start in one city and run until we end up at the finish line, about 200 miles away.

Our team of 12 runners will be split into 2 vans – runners 1-6 in van 1 and runners 7-12 in van 2. Van 1 will start the race and the runners will go in order until the last runner is on the course. With one runner on the road, the rest of your teammates are on support duty inside the van. As runner 1 hands off to 2, and 2 to 3, and so on, the van will have a chance to drive ahead, cheer on the runner, and then head to minor exchanges. Once runner 6 is on the road, van 1 will head to exchange 6, the first major exchange, where they will meet up with van 2, who have been eagerly awaiting their turn. The entire team will be there to cheer for each other and once runner 6 hands off to runner 7, van 1 becomes the “off van” – that is, they can rest, get food, and take a break – while van 2 goes on, and starts their running journey. Again, runners 7-12 will run in order and the two vans will meet again at major exchange 12, where runner 12 will hand off to runner 1, and van 2 becomes the “off van.”

While you are the “off van,” you’ll drive ahead to the major exchange point to wait for your other van to finish their six legs, hunker down and try to get some rest. If you aren’t in the mood to sleep or can’t seem to move your body into sleep mode, try harder because you will need it for the next step.

All that stuff above? Yeah… you get to do it two more times.